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Perpetual Exhaustion
hanging on by a thread

Friday, June 15, 2007
Juleigha had her assessment today for the Speech Foundation of Canada. She has been on the wait list for this place for nearly 2 years. This is the place you want to be able to go to if you have a speech delay. They only take children with very severe speech delays. This morning we drove in for her assessment, it took probably about an hour and a half, covering comprehension as well as expressive language. The SLP had a a booklet that she filled out as they played that she would later use to score Juleigha as well as use to refer back to when writing her report. At the end of the assessment, she turned off the video camera, looked at us and said i don't need to score her, she'll be coming here in the fall. Yep its that bad.

Barely Written by geenalyn at 3:37 PM |


At 7:10 PM, Blogger Agent M said........
((((G)))) But, the thing is, she is going somewhere where she can get help, right? I mean, would they invite her to be there if they thought she wasn't teachable or able to improve? No, they wouldn't. It's so hard to have your kid evaluated like that - I can't even read Q's assessment forms without seriously freaking out. But, this is the first step to getting her where she needs to be and that's great!

At 10:02 PM, Anonymous Candace said........
Aw, Geena. It might be bad now, BUT she will get better! It is scary at first, knowing that your child needs extra help, but she'll be talking in no time. I remember feeling anxious/excited/scared when Maia started preschool, but in the few short months she was there & in therapy, it was amazing to see the progress she made. I know Juleigha will be the same way- pretty soon, you'll be telling her to be quiet! LOL

I think Juleigha is a very lucky little girl to have such a wonderful advocate & mom. If you ever need to talk, as you know we're in the same place, you know where to find me ;)

At 11:19 PM, Blogger geenalyn said........
Agent M: I'm with you on freaking out when reading the assessments. Just when i think i've started to be okay, she gets evaluated by someone else and its worse off then before. But you are right, she is going to do wonderfully at this new place, and they wouldn't have her there if they thought they couldn't help her. From everything i've heard about this place, this is the place to be, and i'm really glad we are going to be there.

Candace, thanks. When i think back to how Juleigha was almost 2 yrs ago, she's come so very far. She talks in sentences now and while you can't understand her very well, she talks all the time. And with her going to this new place, its going to be a lot of hard work, and she's going to have to adjust her boundaries (she doesn't like to be touched, but they use a system called PROMPT), but i just know that this is going to make all the difference for her.

At 3:38 PM, Blogger mamatulip said........
Dude, I'm sorry. It's so hard to hear that anything is wrong with your child, especially something like this. But I really think this is the place for her, and that she'll really flourish once she gets in there and used to the environment.

Hang in there, sweets.

At 5:19 PM, Blogger Mary said........

I'm so sorry Geena. But now she will get that help that she needs--you are such an awesome momma, and you hung in there to get the testing done (finally! things move so slow up there), and now you know she'll get some help.

Hang in there chick, you rock as a mommy!

At 12:32 PM, Blogger Jeffrey said........
Geena, you know I've been there and am still there. I know it is heart breaking to keep hearing it over and over. THere are still days I just want to cry.

Just focus on what a wonderful child you have. I know looking into the future is difficult because we haven't had to deal with this before so we don't know how it will all end. But the truth is that we have these kids for a reason. For me it made me slow down just a little. I know Georgia is a JOY in my life and I know Juleigha is the same for you.

Hang in there Momma!

At 1:16 PM, Blogger Kimmykay said........
Ooops, just noticed I had Jeff's account on. The Jeffrey was my post. LOL. You were probably thinking "Who the heck was that!". sigh.

At 1:18 PM, Blogger geenalyn said........
LOL i was at first when i saw the comment, but then i read it and saw Georgia's name i knew it was you :)

Thankyou everyone for your kind words...they really mean a lot to me. And you are right Kim, Juleigha is a JOY to me as is Lucas (who is on the wait list for the place Juleigha is going to go to)

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